RIGHT-MS
Reducing inequality gaps in MS research and care.
RIGHT-MS investigates how health inequalities affect participation in MS research and registries — and what this means for the validity of the evidence that underpins care.
WHO IS BEING MISSED?
In a study of over 5,000 people living with MS across four UK hospitals, only 38% consented to participate in Trusted.
Lower participation rates were observed in:
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Black and Asian people living with MS
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People living in more deprived areas
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Older individuals
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People who smoke
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Those with multiple overlapping disadvantage factors
WHY THIS MATTERS
If certain groups are systematically under-represented in research datasets, the resulting evidence risks being incomplete.
This can lead to:
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Underestimation of health inequalities
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Less representative clinical guidelines
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Unequal access to research opportunities
WHAT NEEDS TO CHANGE
RIGHT-MS highlights the need for:
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More inclusive consent and recruitment approaches
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Targeted strategies to improve participation in under-represented groups
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Closer collaboration with patient communities and advocacy organisations
We work closely with partners including The Nerve of My MS CIC and Asian MS to better understand barriers to participation and improve inclusion in research.
EMPOWER GROWTH
RIGHT-MS is directly linked to the Trusted platform and aims to ensure that MS research reflects the full diversity of the population it is intended to serve.
